The Protection of Personal Information Act (POPIA) is South Africa’s data protection law. It effectively manages risks associated with sensitive research data while ensuring transparency. The implementation of POPIA in research settings depends on the proactive development of specific tools and frameworks by institutions to fully support researchers in complying with these principles.
POPIA establishes conditions under which personal data, including research data, can be processed. These include accountability, purpose limitation, data minimization, and security safeguards. Sensitive research data must be processed in a manner that protects the rights and interests of data subjects, ensuring minimal risk exposure. POPIA emphasizes the importance of anonymizing or pseudonymizing personal data to ensure that data subjects cannot be re-identified in research datasets. Organizations handling personal data are required to implement technical and organizational safeguards against unauthorized access, data loss, or destruction. This applies to research institutions ensuring secure environments for sensitive data sharing, such as controlled access systems or "safe rooms" for certified users.
POPIA provides data subjects with the right to know how their data is collected, processed, and shared. Research institutions must clearly communicate the purposes of data collection and the conditions for access or reuse. In cases of data breaches, POPIA mandates prompt notification to both the data protection regulator and the affected data subjects.
Research involving personal data is subject to ethical clearance, aligning with POPIA's principles.