Mission 1 of the National Data Strategy (five-mission framework) focuses on unlocking the value of data across the economy, while ensuring responsible, secure, and ethical use. This mission is highly relevant to managing risks associated with enhancing access to sensitive research data, including personal data, by promoting transparency, security, and appropriate mitigation measures. It emphasizes a balance between harnessing data for innovation and safeguarding the rights and interests of stakeholders.
It focuses on enabling safe and lawful sharing of sensitive data, such as personal or health-related data, by applying appropriate governance frameworks and privacy-enhancing technologies. The strategy highlights the need for transparent management of risks associated with sensitive data access, including risks to privacy, security, and ethical principles. The NDS strategy also advocates for secure data environments that ensure sensitive data is accessed only by certified researchers under strict governance.
Mission 1 aligns with the UK's General Data Protection Regulation (GDPR) requirements for transparency in cases of digital security breaches. It emphasizes the importance of ensuring that stakeholders (including researchers, participants, and the public) are notified in cases of security incidents that may affect their rights and interests.