Policy Responses to Rising Autism Diagnoses in Childhood
Annex C. Detailed financial benefits and services tables
Copy link to Annex C. Detailed financial benefits and services tablesTable A C.1. Carer allowances in comparison
Copy link to Table A C.1. Carer allowances in comparison|
Australia |
Denmark |
Estonia |
France |
Germany |
Sweden |
United Kingdom |
United States (California) |
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ALLOWANCE 1 |
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Eligibility assessment |
Formal medical diagnosis required. Eligibility is determined by considering both the medical diagnosis and the support needs. A medically documented disability alone is not sufficient; the child’s daily care needs and the impact on the carer’s capacity to engage in employment are also crucial factors. However, conditions on the List of Recognised Disabilities are automatically guaranteed access to the Carer Allowance, pending an official diagnosis. ASD features on that list. |
Entirely based on an assessment of the child’s support and care needs, and limitations in daily life. Formal medical diagnosis is not required but parents usually provide supporting medical evidence – such as reports from healthcare professionals. |
Primarily based on an assessment of the child’s daily support and care needs. Formal diagnosis not required; supporting medical documentation (e.g. specialist reports) is necessary to determine the severity of the child’s disability. Assessment procedures vary by municipality; usually relies on assessment conducted by the Social Insurance Board. |
AEEH eligibility requires that the child’s impairment be acknowledged as causing a disability; allowance is not automatically granted based on a diagnostic label alone. Benefit decisions are based on an assessment of the child’s support needs and subsequent disability severity. MDPH evaluates the child and assigns a taux d’incapacité (disability rating) reflecting how much ASD limits daily life of the child and what support is required. Complementary allowance level depends on the child’s care needs and subsequent care burden on parents. |
Medical documentation is necessary, but a formal medical diagnosis is neither mandatory nor does it alone guarantee entitlement. Eligibility is determined by the assessed level of care dependency. The Medical Service of the Long-term Care Insurance assesses the child’s abilities and practical support needs in daily life (usually in-person visits). |
Does not require a formal medical diagnosis. The child must demonstrate needs for extra care or supervision due to disability or a medical condition. Parents complete an application form indicating their child’s care and supervision needs. Additionally, the treating doctor completes a medical report. |
No separate assessment of the child for Carer’s Allowance. Eligibility is based on the child’s Disability Living Allowance (DLA) status: To qualify, the child must be receiving DLA at the middle or highest rate for the care component, which indicates significant care needs. Additionally, the carer needs to spend at least 35 hours a week caring for the child. |
A medical diagnosis is required to establish the child’s disability. Additional medical documentation from healthcare providers that details the child’s need for in-home supportive services is required. An IHSS social worker conducts an in-person assessment to evaluate the child’s functional limitations and the level of assistance required. This assessment focusses on the child’s ability to perform activities of daily living. |
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Further details |
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ALLOWANCE 2 |
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Eligibility assessment |
Formal medical diagnosis required. Eligibility is determined by considering both the medical diagnosis and a support needs assessment that considers the child’s daily care needs and functional impairments. The extent of care required and how it impacts the carer’s capacity to engage in employment are critical. Child’s care needs have to require full-time care. |
Based on an assessment of the child’s support and care needs, and limitations in daily life. Formal medical diagnosis is not required but parents usually provide supporting medical evidence – such as reports from healthcare professionals. An additional condition: the alternative to home care is a 24‑hour stay outside the home or the need for care is equivalent to a full-time job. |
Primarily based on an evaluation of the child’s need for continuous care (including details of diagnosis and severity). Requires a medical certificate from a healthcare professional that explains the nature of the impairment, its impact on daily functioning, and the expected period during which care is required. |
Formal diagnosis not strictly required but a medical certificate from the child’s treating physician is needed. The certificate must state that the child’s disability necessitates continuous parental presence and specify the care required. CAF evaluates whether child’s condition requires sustained care, justifying the parent’s temporary cessation or reduction of work. Assessment does not involve a detailed support needs evaluation like that used for the AEEH. |
Does not necessarily require a formal medical diagnosis. Child must meet eligibility criteria under LSS Act. To qualify under eligibility group 1 of LSS, the child would need a medical diagnosis of ASD. The child’s impairment must cause significant difficulties in daily life to receive the allowance. Eligibility depends on whether their support needs require assistance for more than 20 hours per week. |
No separate assessment of the child for UC Carer’s Element. Eligibility is based on the child’s DLA status: To qualify, the child must be receiving DLA at the middle or highest rate for the care component, which indicates significant care needs. Additionally, the carer needs to spend at least 35 hours a week caring for the child. |
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Further details |
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Source: Information collected by the Secretariat and verified in discussions with national autism organisations.
Table A C.2. Disabled child allowances in comparison
Copy link to Table A C.2. Disabled child allowances in comparison|
Canada (Ontario) |
Estonia |
France |
Israel |
Netherlands |
United Kingdom |
United States (California) |
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ALLOWANCE 1 |
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National Insurance Institute (Bituach Leumi) Five levels 1. 50% – NIS 1 880 2. 100% – NIS 3 694 3. 112% – NIS 4 352 4. 188% – NIS 6 947 5. 235% – NIS 8 828 Child with ASD automatically entitled to 100% but can receive higher rate (up to 235%) if has co-morbidities and/or high dependency on others. Family with two children with disability or more is entitled to a benefit increased by 50% for each child
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Care component:
Mobility component:
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Eligibility assessment |
A formal medical diagnosis is not strictly required. To qualify for CDB, the child must be assessed by a health professional who documents that the child has a severe, prolonged impairment on Form T2201 (Disability Tax Credit Certificate). This form details the diagnosis, support needs in daily activities, and the expected duration of the disability. |
Formal medical diagnosis is not mandatory if the submitted medical documentation sufficiently demonstrates the disability and its severity. Child must undergo an official disability assessment by the Social Insurance Board. An expert panel reviews medical information and the child’s support needs in daily life to determine degree of severity of disability. ASD is evaluated under the category of mental or neurodevelopmental disorders for this purpose. |
AEEH eligibility requires that the child’s impairment be acknowledged as causing a disability; allowance is not automatically granted based on a diagnostic label alone. Benefit decisions are based on an assessment of the child’s support needs and resulting disability severity. MDPH evaluates the child and assigns a taux d’incapacité (disability rating) reflecting how much the impairment limits the daily life of the child and what support is required. |
Formal ASD diagnosis required (“double diagnosis”): a) medical diagnosis from a qualified physician (child psychiatrist, developmental paediatrician, or neurologist) b) psychological assessment from a qualified psychologist (clinical, developmental, or educational) ASD diagnosis leads to automatic entitlement. Care needs assessment conducted by NII’s Medical Board only to determine higher than standard rate because of high dependency on others. |
Eligibility for the benefit depends on whether the child’s care requirements are intensive. This must be confirmed through a formal evaluation by the Care Needs Assessment Centre (CIZ). The child must either hold an existing long-term care indication (Wet langdurige zorg, Wlz), as determined by the CIZ, or meet the eligibility threshold in a care and supervision assessment. In this assessment, the CIZ applies a two‑component framework – care and supervision – each divided into five functional domains. Parents must hand in documentation from the child’s treating physician confirming the child’s diagnosis. They also complete a questionnaire describing their child’s everyday care and supervision needs. |
Entirely based on an assessment of the child’s support needs. Formal medical diagnosis is not required but parents usually need to provide supporting evidence – such as reports from healthcare professionals. The eligibility evaluation process involves completing a detailed questionnaire that assesses the child’s care and mobility needs. |
Medical documentation of a condition is necessary, but a formal medical diagnosis alone does not guarantee an allowance. The medical condition has to cause “marked and severe functional limitations”. Disability Determination Services (DDS) review all documentary evidence to assess how the impairment impacts the child’s daily functioning. |
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Further details |
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ALLOWANCE 2 |
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Eligibility assessment |
Eligibility is based on the child’s DLA status, with rates corresponding to the level of DLA received. It does not require the carer to provide a specific number of care hours. |
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Further details |
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Source: Information collected by the Secretariat and verified in discussions with national autism organisations.
Table A C.3. Additional cost allowances in comparison
Copy link to Table A C.3. Additional cost allowances in comparison|
Australia |
Canada (Ontario) |
Denmark |
France |
Germany |
Netherlands |
Sweden |
United Kingdom |
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ALLOWANCE 1 |
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Eligibility assessment |
To enter the NDIS system, a formal medical diagnosis is not strictly required. A child must have an impairment that is likely to be permanent and causes a substantial reduction in functional capacity. Early intervention supports can also be provided for eligible children with likely permanent impairment or children younger than six with developmental delay, where the supports are likely to benefit the person and reduce the impact of their impairment. Children with a diagnosis of ASD at Level 2 or 3 have so far had easier access to the NDIS, as these two levels of ASD are on the NDIS’ Access List A. |
A formal medical ASD diagnosis is required. After registering with the required diagnostic documentation through AccessOAP, an OAP care co‑ordinator (often a clinical professional or programme advisor) reviews the submitted materials and carries out a Determination of Needs assessment. This process involves interviewing the child’s parents and reviewing relevant documents, such as diagnostic evaluations and school reports, to assess the child’s support needs and determine the corresponding level of funding. |
Entirely based on an assessment of the child’s support and care needs, and limitations in daily life. Formal medical diagnosis is not required but parents usually provide supporting medical evidence – such as reports from healthcare professionals. |
AEEH eligibility requires that the child’s impairment be acknowledged as causing a disability; allowance is not automatically granted based on a diagnostic label alone. Benefit decisions are based on an assessment of the child’s support needs and resulting disability severity. MDPH evaluates the child and assigns a taux d’incapacité (disability rating) reflecting how much the impairment limits the daily life of the child and what support is required. The complementary allowance level depends on the amount of extra costs parents incur because of the child’s disability. |
A formal medical diagnosis is required. Additionally, the responsible agency (e.g. Youth Welfare Office) carries out a participation and needs assessment. It is a collaborative assessment and planning process in which social workers, the child (and family) review all evidence (medical/psychological reports, school reports, etc.) to map out the child’s functional needs. The assessment is person-centred, based on the WHO’s ICF framework, and looks at how the impairment affects daily life (self-care, mobility, communication, learning, social interaction) and what supports are required. |
Depending on the child’s situation, the responsible authority is either the local municipality or the Care Needs Assessment Centre (CIZ). Evaluation involves reviewing medical reports and professional assessments. The process focusses on evaluating the child’s care needs rather than the specific diagnosis – a formal medical diagnosis is not necessarily required. |
A formal medical diagnosis is not required but the treating doctor must complete a medical report. Eligibility depends on whether the family incurs extra costs because of the child’s disability or medical condition, compared to a child without disability of the same age. |
While a formal medical diagnosis can support the assessment, it is not strictly required. Eligibility focusses on the child’s support needs in daily life. Assessment evaluates the child’s abilities and challenges in daily activities; it also considers the family’s needs as a whole, not just the child’s needs. |
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Further details |
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ALLOWANCE 2 |
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Eligibility assessment |
Child must have a formal medical statement or psychological assessment confirming a severe impairment that significantly limits daily function (e.g. mobility, communication, personal care). Parents complete an Expense Report listing actual or expected disability-related costs (e.g. travel, equipment, respite). A Special Agreements Officer evaluates the severity of the disability, functional limitations, and extraordinary costs to determine eligibility and benefit level. |
Eligible if already receives the AEEH. |
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Further details |
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Source: Information collected by the Secretariat and verified in discussions with national autism organisations.
Table A C.4. Special educational support for children with SEN across countries
Copy link to Table A C.4. Special educational support for children with SEN across countries|
Country |
General system structure |
Assessment & decision making |
Further details |
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Who |
How |
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Australia |
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Parents together with school/teachers ultimately decide on the child’s school placement – usually choice limited by school district. |
A formal medical diagnosis is typically required to access specialised educational supports, including specialised classes and specialised schools. School administrators and specialised professionals (such as educational psychologists, special education teachers, and the child’s therapists) provide recommendations and advise parents based on their assessment of the child’s needs. There is no standardised assessment procedure. School decides on the concrete support measures for the child and details them in the child’s Individual Learning Plan. |
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Canada |
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Provincial/territorial level committees (e.g. Ontario’s Identification, Placement and Review Committee which consists of at least three members) or even school-based multi-disciplinary teams which usually involve school representatives, special education experts, and parents. |
A formal medical diagnosis is frequently required while placement and support decisions also consider the child’s support needs. These committees or school-based teams assess the child’s support needs through a review of primarily documentary evidence and subsequently decide on the child’s school placement and services package – the assessment typically culminates in an IEP or IPP that formalises the placement decision. The scope and reliance on diagnostic labels of these assessments may vary a lot across provinces. Parents usually play a key role in identifying their child’s needs and necessary special education services. |
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Denmark |
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The main stakeholders involved are: child’s current school, Municipal Council, and municipality’s Educational-Psychological Counselling (Pædagogisk-Psykologisk Rådgivning, PPR) which may include psychologists, pedagogues, health professionals, and special education experts. |
A formal medical diagnosis is not required – placement and support decisions are entirely based on a support needs assessment of the child. Municipal PPR undertakes the educational-psychological assessment (PPV) of the child, evaluating the child’s academic, personal and social skills and needs. It also proposes specific educational support services. The current school’s head teacher is then consulted to decide whether the child’s needs exceed what the current school can provide; if so, the Municipal Council (via a special committee) reviews the PPV and authorises to place the child in a special education class or school. Parents are involved in all these stages. Assessments typically rely on documentary evidence, as well as in-person evaluations of the child. |
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Estonia |
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The main stakeholders involved are: school director, parents, specialised school support team, and a regional counselling committee under municipal co‑ordination. Each counselling committee (at regional centres, called Rajaleidja (Pathfinder Centres)) consists of at least five members, including special educator, speech therapist, school psychologist, social worker, and representative of the county or city government. |
A formal medical diagnosis is not necessarily required – placement and support decisions are primarily based on an assessment of the child’s support needs. Multi-disciplinary school support team (pedagogue, psychologist, speech therapist, etc.) carries out a pedagogical-psychological assessment of the child’s learning, social and self-care needs and prepares recommendations, which the municipal Rajaleidja’s counselling committee then reviews (alongside medical certificates) to advise on school placement and support services; school director and parents together formalise the final decision. Parents must approve their child’s placement. Student can only receive special education support (e.g. attend a special education school) following the above described assessment conducted by Rajaleidja’s counselling committee. |
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France |
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The main stakeholders involved are: Department of the Disabled (Maison Départementale pour les Personnes Handicapées, MDPH), Multi-disciplinary Evaluation Team (Équipe Pluridisciplinaire d’Évaluation, EPE), Committee of Rights and Autonomy (Commission des Droits et de l’Autonomie, CDAPH), and School Monitoring Team (Équipe de Suivi de la Scolarisation, ESS). The EPE may include physicians, paramedical staff, teachers, social workers, etc. |
A formal medical diagnosis is typically required – however, placement and support decisions are primarily based on an assessment of the child’s support needs. The Multi-disciplinary Evaluation Team (EPE) of the MDPH assesses these needs based on the GEVA/GEVA-Sco report (Guide d’évaluation des besoins de compensation en matière de scolarisation), which is prepared jointly by the School Monitoring Team (ESS) and the child’s parents. The evaluation draws on the report and other documentary evidence and, where appropriate, may include in-person observations through home or school visits. On the basis of this assessment, the decision making body (CDAPH) of the MDPH determines the child’s school placement and the educational support measures to be provided. Parents are typically most involved during the initial stages of the process, working with the school to compile the assessment report submitted to the MDPH. |
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Germany |
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The main stakeholders involved are: parents, the local school authority (Schulaufsicht), the SEN Service (Sonderpädagogischer Dienst) of the local school authority, and the school’s teachers. |
A formal medical diagnosis is not necessarily required – placement and support decisions are primarily based on an assessment of the child’s support needs. Such an assessment of the child’s educational support needs (sonderpädagogischer Förderbedarf) can be initiated by parents and teachers. A multi-disciplinary team (or individual) then reviews documentary evidence (reports, grades, medical records…) and conducts in-person observations and tests across functional domains (learning, communication, social-emotional, motor, self-care) to assess the child’s needs. The local school authority (Schulaufsicht) then issues recommendations on school placement and educational support provisions. Parents usually make the final decision regarding school placement. |
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Israel |
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Eligibility and Characterization Committee for Special Education: operate at local level (approx. 369 in Israel), composed of five members: representatives of the Ministry of Education, the local authority, and the superintendent of Special Needs Education, a parent of a child with special educational needs, and an educational psychologist. These Committees have the authority to determine the student’s eligibility for special education. The parents, student, student’s teacher, and other professionals may be invited to join the meeting of the Committee. A Multi-disciplinary Team (including child’s teachers, parents, specialists, such as their therapists) decides on the composition of the services basket for the child. |
A medical diagnosis of the disability is required. Eligibility and Characterization Committee evaluates the child’s support needs to determine eligibility for special educational support, recommends a suitable schooling option, and decides on the scope of the service basket available to the child. A Multi-disciplinary Team subsequently decides on the precise composition of the child’s services basket (e.g. what therapy and teaching materials) and creates the child’s Individual Education Program (IEP). Normally, the child’s teacher(s) complete a functioning questionnaire (RAMA) for the Committee’s consideration, however, the questionnaire is no longer consistently used. The Committee relies primarily on other documentary evidence from the child’s parents, psychologist, and teachers. |
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Netherlands |
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The main stakeholders involved are: parents, teachers, independent experts, and regional school partnership groups (samenwerkingsverband) which include regional regular and special education schools. |
A formal medical diagnosis is not necessarily required – placement decisions are primarily based on an assessment of the child’s support needs. If the regular school cannot provide the child with the support needed, the child can be referred to a special education school. For Cluster 3 and 4 special education schools, access is determined through a Declaration of Admissibility (toelaatbaarheidsverklaring, TLV) issued by the regional school partnership group (samenwerkingsverband). The assessment is primarily document-based (medical certificates, school reports, etc.), with in-person evaluations conducted if clarification is needed. |
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Sweden |
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The main stakeholders involved are: parents, school director, municipality, school’s teaching staff, and independent experts, such as psychologist and special education teachers. |
A formal medical diagnosis is generally not required – placement and support decisions are based on an assessment of the child’s support needs. There are essentially three assessment procedures: one to determine the child’s need for special support at a regular school, one to determine the child’s need to attend an Adapted School, and one for attendance at a Special School. Assessment 1: When Minor Adjustments seem not to suffice and a need for Special Support is suspected – raised by teachers, parents or the child – the school principal must immediately commission a needs assessment (utredning av behov av särskilt stöd) led by special-education staff in collaboration with class teachers, school health professionals and, where relevant, external specialists. The assessment relies on both documentary evidence (e.g. school records, teacher observations, psychological reports) as well as in-school observations and interviews with the student and parents. The school principal makes the final decision on the provision of special support. Special Support measures are then specified in an individual Action Plan. Assessment 2: Before a child can be placed in an Adapted School, the municipality must carry out a Target-Group Investigation (utredning om målgruppstillhörighet). This investigation typically comprises four assessment parts – pedagogical, psychological (by a licensed psychologist), medical (by a physician) and social (by a school counsellor or equivalent) – and relies on documentary evidence as well as in-person observations and interviews with the student and parents. Once the multi-disciplinary report confirms the child meets the criteria (e.g. intellectual disability or equivalent severe needs), the municipality formally decides on placement in the Adapted School. Parents play a crucial role at all stages of the assessments and decision making. |
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United Kingdom |
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The main stakeholders involved are: parents, school’s Special Educational Needs Co‑ordinator (SENCo), the local authority, and independent experts. |
A formal medical diagnosis is not required – placement and SEN support/EHCP decisions are entirely based on an assessment of the child’s support needs. There are two assessment procedures, one to determine the child’s need for SEN support and one for an EHCP for children with extensive support needs. SEN support: The school’s SENCo in partnership with teachers, parents and, where necessary, local-authority specialists (e.g. educational psychologists or health professionals) assess the child’s support needs. They assess the child against four broad areas of needs and subsequently draft a SEN support plan, detailing the special educational measures that the child is entitled to. Assessment relies on documentary evidence and may also include in-person evaluations. EHCP: EHCP needs assessments are carried out by the local authority, which must gather information on the child’s educational, health and care needs from a range of professionals (parents, school’s SENCo, educational psychologist, healthcare practitioners, social worker, etc.). The assessment relies primarily on documentary evidence (e.g. school reports, medical and therapy records) but may also include in-person evaluations. Based on the gathered information, the local authority then decides whether the child requires an EHCP and, if so, drafts one which details the most suitable school setting and educational support. Parents play a crucial role at all stages, such as the finalisation of the EHCP. |
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United States (California) |
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Individualised Education Program (IEP) Team which includes the parents, special education teacher, regular education teacher, and a qualified representative of the school district. |
A formal medical diagnosis is required – additionally, a comprehensive assessment of the child’s support needs is conducted to determine placement and support measures. Only children that meet one of the 13 disability categories in the Individuals with Disabilities Education Act (IDEA) (e.g. intellectual disability, visual impairment, deaf-blindness, autism, etc.) can be found eligible for special-education and receive IEP services. Decisions on school placement and services are described in the child’s Individualised Education Program (IEP), which is developed and reviewed by an IEP Team. Eligibility requires both (a) a formal disability determination (medical diagnosis) and (b) a multi-disciplinary needs assessment. A parent or teacher referral initiates a written request for assessment. The assessment covers a broad range of areas of the child’s life and relies on both documentary evidence (medical records, school reports, etc.) and in-person evaluations (e.g. standardised tests, interviews, observations). Parents play a crucial role at all stages of the assessment and IEP creation. |
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Source: Information collected by the Secretariat and verified in discussions with national autism organisations.
Table A C.5. Access to paramedical therapies for children with ASD/disability across countries
Copy link to Table A C.5. Access to paramedical therapies for children with ASD/disability across countries|
Country |
Institution / Programme |
Eligibility Criteria |
Access Pathway |
Therapy Hours / Limits |
ASD-Specific |
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Australia |
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Canada (Ontario) |
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Denmark |
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Estonia |
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France |
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Germany |
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Israel |
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Netherlands |
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Sweden |
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United Kingdom |
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United States (California) |
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Source: Information collected by the Secretariat and verified in discussions with national autism organisations.