Emerging technologies

Creation and Governance of Human Genetic Research Databases


Published: October 2006
Pages: 159

Large-scale study of populations may contribute significantly to science’s understanding of the complex multi-factorial basis of disease and to improvements in prevention, detection, diagnosis, treatment and cure. This book summarises the proceedings of a conference on human genetic research databases. It examines what they are and provides a number of examples. It looks at how they have been established, governed, and funded. And it looks at how they are managed and commercialised, exploring what the policy implications are for governments.



Table of contents

Chapter 1. Introduction

Chapter 2. Human Genetic Research Databases

Chapter 3. Establishment of a HGRD

Chapter 4. Data and Sample Collection and Management

Chapter 5. Database Management and Governance

Chapter 6. Commercialisation Considerations

Chapter 7. Conclusions

Workshop Agenda
List of Participants