Genetic Testing - Policy Issues for the New Millennium
The aims and objectives of the Workshop held on 23-25 February 2000, were to:
- Review the current situation in genetic testing and to explore the impact of new genetic technologies upon healthcare practice in the next few years.
Consider the impact of commercialisation of new genetic technologies on healthcare economics and on the delivery of genetic testing.
Endorse best practice and make policy statements on:
- The importance of genetic counselling.
- Storage and confidentiality relating to samples and genetic data.
- Facilitating access to genetic testing.
- Appropriate involvement of patient/consumer groups in policy making, regulation and oversight.
- Referring tests to accredited facilities.
To consider the benefits of international harmonisation in the areas of:
- Regulation of the validation of genetic tests.
- International recognition of external quality assessment programmes.
- Standards for recording of genetic data.
- Evaluation of the efficacy of new genetic tests and technologies.
- International recognition of laboratory accreditation.
Workshop Programme and Abstracts