Biotechnology policies

OECD-NSF Workshop agenda: building a smarter health and wellness future

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OECD workshop sponsored by the
National Science Foundation

Washington, DC,
United States
15-16 February 2011

Workshop background and objectives

AGENDA

National Science Foundation, Arlington, VA, United States

Tuesday, 15 February 2011

08:00 Registration/Coffee

08:30-09:00 Welcome and Introduction

08:30

Following welcome remarks and introductions, a brief presentation will be given of the workshop’s goals and structure.

Welcome Remarks : Purpose of the Workshop
Chair: Suzi IACONO (bio), Senior Science Advisor, Directorate for Computer and Information Science and Engineering, National Science Foundation, United States

Peter ARZBERGER (bio), Assistant Director, Directorate for Computer and Information Science and Engineering, National Science Foundation, United States

Tom PETERSON (bio), Assistant Director, Directorate for Engineering, National Science Foundation, United States

Myron GUTMANN (bio), Assistant Director, Directorate for Social, Behavioral & Economic Sciences, National Science Foundation, United States
Andrew WYCKOFF (bio), Director for Science Technology and Industry, OECD

09:00-10:00 Keynote presentations

09:00

Keynote: Where are we heading? The urgent realities of our health and wellness future

Mark B. McCLELLAN (bio) (presentation), Director, Engelberg Center for Health Care Reform, Brookings Institution, Washington DC, United States

09:30

Keynote: Realising the vision of a "learning health system"

Charles P. FRIEDMAN (bio) (presentation), Chief Scientific Officer, Office of the National Coordinator for Health Information Technology, Department of Health and Human Services, United States

10:00-12:30 Session 1: Smart health & wellness: the emerging models

This session will review new technical and socio-technical developments across OECD countries – mobile health, wireless health devices, sensor-based technologies, social networks, the semantic web and intelligent systems. What impacts are these new developments having on health innovation, health services, patient choices and wellness? What will the new and emerging models of care look like?

Chair: Susan L. GRAHAM (bio), Pehong Chen Distinguished Professor Emerita, Department of Electrical Engineering and Computer Science, University of California, Berkeley, United States

10:15-10:30

IT essentials for a personalised genomic medicine era

Peter J. TONELLATO (abstract/bio) (presentation), Director of the Laboratory for Personalised Medicine, Center for Biomedical Informatics, Harvard Medical School, United States

10:30-10:45

Sensor technologies for remote, ubiquitous care and prevention

Mikael EKLUND (abstract/bio) (presentation), Program Director Electrical and Computer Engineering, University of Ontario Institute of Technology, Canada

10:45-11:00 Coffee break

11:00-11:15

The future promise of mobile health

Deborah ESTRIN (abstract/bio) (presentation), Director, Center for Embedded Network Sensing (CENS), UCLA, United States

11:15-11:30

Social networking for improving patient health and wellness

James HEYWOOD (abstract/bio) (presentation), Chairman, Patients Like Me, United States

11:30-11:45

Connecting physicians for collaborative medicine

Gabriel TICK (abstract/bio) (presentation), President, MeshMd.com, Canada

11:45-12:00

Beyond Health 2.0: The semantic web and intelligent systems

Erik van MULLIGEN (abstract/bio) (presentation), Chief Science Officer, Netherlands Bioinformatics Centre, the Netherlands

12:00-12:30

Q/A-Panel discussion

12:30-13:30 Lunch

13:30-15:30 Round Table Debate: End-to-end solutions for patients

This round table debate, involving the audience, will address how to prevent siloed approaches and increase the value that patients/consumers derive from the new technical and socio-technical developments described in the previous session.

Moderator : Steve LOHR (bio), Reporter for the New York Times, United States

End-to-end solutions: The future ICT landscape

Discussant: Isaak KOHANE (bio), Chair of Informatics and Lawrence Henderson Professor of Paediatrics & Health Sciences and Technology, Harvard Medical School, United States

Generating solutions that patients want

Discussant: Anders OLAUSON (bio) (presentation), President, European Patients Forum

15:30-16:00 Coffee break

16:00-18:00

Break-out sessions

Participants may attend any breakout session they wish. Please sign up for a session at the beginning of the workshop: rooms will be assigned based upon expected attendance, as rooms have different seating capacities. Each concurrent session will feature a 20 -minute presentation from an invited speaker or speakers highlighting key issues for the debate. Following the formal presentation and question period, participants will be asked to discuss opportunities and challenges related to the session’s topic.

Break-out session 1: Predicting our data future	Break-out session 2: Empowering and protecting patients/consumers	Break-out session 3: Achieving change in a system with limited resources
Moderator: *Jerry SHEEHAN* (bio), Assistant Director for Policy Development, National Library of Medicine, United States	Moderator: *Rosemary HUXTABLE* (abstract/bio), Deputy Secretary, Department of Health and Ageing. Australia	Moderator: *Blackford MIDDLETON* (bio), Corporate Director of Clinical Informatics Research & Development (CIRD), Partners Healthcare System, United States
Discussant: *Angelo ROSSIMORI* (abstract/bio) (presentation), Researcher, CNR, Italy Discussant: *Misha PAVEL* (bio) (presentation), Program Director, Smart Helath and Well-being, National Science Foundation, United States	Discussant: *Gilles FRYDMAN* (abstract/bio), Founder and President, Assocation of Cancer Online Resources, United States	Discussant: Karl STROETMANN (abstract/bio) (presentation), Senior Research Fellow, EMPIRICA, Germany
This break out session will consider the following questions: What new forms of health and wellness data are emerging? How can data coherence and consistency be achieved given the heterogeneous sources? How to extract knowledge and meaning from these new forms of data for both research and health care purposes? How to achieve semantic coherence and prevent the hazards of inaccurate health information?	Social networks provide interesting opportunities for sharing health information; at the same time, they raise many questions in relation to the potential uses of that information. How can social networks empower patients to manage their own conditions? What sensitive information is being generated, shared and archived? What actions/frameworks are needed to protect an individual’s privacy while allowing him/her to benefit from participation in these networks? How can users be informed about the way personal data is being collected and processed if data collection is ubiquitous and systems are designed for global use?	The technological developments described in Session 1 promise to deliver innovative ways of meeting patients’ needs for care and support in a system that is committed to the provision of care but has limited resources. They are expected to not only decrease the costs for health care but also to improve quality of life for elderly people and to provide more accurate and timely information on the health status of a patient. But are these expectations indeed realistic? Who will pay? Who will benefit? What can we learn from the adoption of electronic health records and personal health records? What indicators or measures may be of value to policy makers and why?

18:15-20:15 Cocktail Reception, Westin Arlington Gateway, courtesy of Oracle and PhRMA

Wednesday, 16 February 2011

08:00 Breakfast/Coffee

08:30-11:45 Session 2: Common International challenges or divergent national paths?

This session will focus on how different governments and economies address issues relating to the developments described in the previous sessions. The panel will include speakers representing a range of backgrounds - such as policy makers, academics, professional associations and the private sector - from different OECD countries. The speakers will be asked to briefly present their perspective on what is needed to support and stimulate innovation for a smart health and wellness future, possibly drawing on national examples, pilot or demonstration projects/case studies.

Chair: Yuko HARAYAMA (bio), Deputy Director, Directorate for Science Technology and Industry, OECD

08:30-08:45

A view from the OECD’s aging and long term care project
Francesca COLOMBO (abstract/bio) (presentation), Principal Administrator, Health Division, Directorate for Employment, Labour and Social Affairs, OECD

08:45-09:00

A view from Europe’s 2020 agenda

Peteris ZILGALVIS (abstract/bio) (presentation), Head of Unit, ICT for Health Directorate, Information Society and Media Directorate General, European Commission

09:00-09:15

What the European interoperability roadmap could bring to the health future

Michèlle THONNET (abstract/bio) (presentation), Health, information systems and security specialist, Ministry of Health, France

09:15-09:30

Solutions for Japan’s aging population

Toshio OBI (abstract/bio) (presentation), Director, Institute for E-Government, Waseda University, Japan

09:30-09:45

Addressing the digital gap in Korea

Tai M. CHUNG (abstract/bio) (presentation), Professor, Sungkyunkwan University, Korea

09:45-10:00

The need for social innovation- Redesigning communities

Yoko NITTA (abstract/bio) (presentation), Associate Fellow, RISTEX, Japan

10:00-10:15

Q/A - Panel discussion

10:15-10:30 Coffee Break

OECD Country Reports

10:30-10:45

Mobile Health solutions for healthier life styles in Italy

Maura TUROLLA (abstract/bio) (presentation), Telecom Italia Strategy and Innovation, Director, Handset Innovation and Research, Italy

Alberto SANNA (bio) (presentation), Director, e-Services for Life and Health Unit, H San Raffaele Scientific Institute, Italy

10:45-11:00

Personally-controlled Electronic Health Records (PC EHR) system in Australia

Rosemary HUXTABLE (abstract/bio), Deputy Secretary, Australian Department of Health and Ageing, Australia

11:00-11:15

Social care Informatics and Holistic Health Care
Michael RIGBY (abstract/bio) (presentation), Emeritus Professor, Keele University, United Kingdom

11:15-11:30

Citizen-centred health information technologies: A view from Portugal

Constantino SAKELLARIDES (abstract/bio) (presentation), Director, Portuguese School of Public Health, Portugal

11:30-11:45

Q/A - Panel discussion

11:45-12:30

Reporting back on break-out sessions

The three moderators from the break-out sessions will report back on the outcomes of discussions.

Chair: Kelly JOYCE (bio), Program Director, Science, Technology and Society Program, National Science Foundation, United States

Jerry SHEEHAN (bio), National Library of Medicine-United States

Rosemary HUXTABLE (bio), Deputy Secretary, Department of Health and Ageing. Australia

Blackford MIDDLETON (bio), Corporate Director of Clinical Informatics Research & Development (CIRD) at Partners Healthcare System, United States

12:30-13:30 Lunch

13:30-15:15 Session 3: Turning ideas into practice: Towards an international research and policy agenda

While the new technological developments described in the previous sessions are designed to enable the patient/consumer to take better charge of his/her health , and to introduce new and more effective care models, a framework for understanding how to move forward on the new vision is not yet in place. Moving from proof of concept demonstrations to effective deployment of these technologies requires overcoming three broad categories of challenges. First, failure to achieve interoperability and integration of the disparate information systems may mean that expected health benefits are not realised. Second, failure to understand the broader implications of the new human-machine interactions may introduce new sources of errors and risk. Third, liability, privacy and ethical concerns may affect widespread adoption and value to the users. This session will consider these challenges and the strategies to address them.
Chair: Steve ONDRA (bio), Senior Policy Advisor for Health Affairs, Department of Veterans Affairs, United States

13:45-14:00

Planning, design, implementation and management of health information networks at the leading edge: What are the key challenges?

Helga RIPPEN (abstract/bio) (presentation), Chief Health Information Officer and Vice President, Center for Health Information Technology, United States

14:00-14:15

Economic and regulatory frameworks for mHealth

Robert JARRIN (abstract/bio), Director, Government Affairs, QUALCOMM, United States

14:15-14:30

Integrating heterogeneous data sources: A technology or policy challenge?

David BUNKER (abstract/bio) (presentation), Head, Strategy and E-Health Architecture, NEHTA, Australia

14:30-14:45

Trustworthy systems: Reliability, security, privacy, integrity

Carl GUNTER (abstract/bio) (presentation), Director, Strategic Health IT Advanced Research Project on Security, University of Illinois, United States

14:45-15:00

Incentives, business models, and the economics of the new models of care: Shaping the innovation ecosystem

Anna Lisa SILVESTRE (abstract/bio) (presentation), Vice President, Online services, Kaiser Permanente, United States

15:00-15:15

Who will benefit? Who will pay? A private sector perspective
Bruce H. TAFFEL (abstract/bio) (presentation), Vice President, Chief Medical Officer, Shared Health, United States

15:15-15:30 Coffee break

15:30-16:00

Q/A - Panel discussion

16:00-17:30 Round-table debate: Key messages for an international research and policy agenda

This session will take stock of the main messages from the workshop, aiming to identify what is needed to move towards a Smarter Health and Wellness Future, highlighting priorities for an international research and policy agenda

Moderator: Robert D. ATKINSON (bio), President, Information Technology and Innovation Foundation, United States

Rapporteurs’ Reports - Followed by debate

Michael RIGBY (bio), Emeritus Professor, Keele University, United Kingdom

Deborah ESTRIN (bio), Director, Center for Embedded Network Sensing (CENS), UCLA, United States

Jeremy THORP (bio), Director, National Health Services, United Kingdom

Taylor REYNOLDS (bio), Head of OECD's Information Economy Unit, Elettra RONCHI (bio), Senior Policy Analyst, OECD

Howard WACTLAR (bio), Director, Information and Intelligent Systems (IIS) Division, CISE, National Science Foundation, United States

Joseph ALHADEFF (bio), Chair of the ICCP OECD-BIAC Committee

17:30

Closing Remarks

Dimitri YPSILANTI (bio), Head of Division, Information, Communications and Computer Policy, OECD Directorate for Science, Technology and Industry

Howard WACTLAR (bio), Director, Information and Intelligent Systems Division, CISE, National Science Foundation, United States

For further information please contact elettra.ronchi @ oecd.org