Health policies and data

Dementia and Care

 

Dementia is a debilitating condition for which there is currently no cure. An estimated 44 million people are living with dementia worldwide and health systems and social services often fail to provide adequate support. Many people living with dementia do not receive a timely diagnosis and face poor quality of life and loss of independence, while the families and carers who support them are under huge strain, suffer ill-health and are unable to work.

There is a need for urgent action and the OECD is working to support countries in developing and implementing better policies that can improve the lives of people living with dementia.

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Dementia and Care - Resources

Care-Needed

Care Needed: Improving the Lives of People with Dementia

June 2018 - Across the OECD, nearly 19 million people are living with dementia. Millions of family members and friends provide care and support to loved ones with dementia throughout their lives. Globally, dementia costs over USD 1 trillion per year and represents one of the leading causes of disability for elderly adults. These numbers will continue to rise as populations age. Until a cure or disease-modifying treatment for dementia is developed, the progress of the disease cannot be stopped. This report presents the most up-to-date and comprehensive cross-country assessment of the state of dementia care in OECD countries. In recent years, OECD countries have enhanced their efforts to provide high-quality dementia care during diagnosis, early and advanced dementia, but improving measurement is necessary for enhancements in care quality and outcomes for people with dementia.

 

Addressing-Dementia

Addressing Dementia: the OECD Response

March 2015 - The large and growing human and financial cost of dementia provides an imperative for policy action. It is already the second largest cause of disability for the over-70s and it costs $645bn per year globally, and ageing populations mean that these costs will grow. There is no cure or effective treatment for dementia, and too often people do not get appropriate health and care services, leading to a poor quality of life. Our failure to tackle these issues provides a compelling illustration of some of today’s most pressing policy challenges. We need to rethink our research an innovation model, since progress on dementia has stalled and investment is just a fraction of what it is for other diseases of similar importance and profile.

 

Dementia-Research-and-Care

Dementia Research and Care - Can Big Data Help? 

February 2015 - What potential does “Big Data” hold for finding new approaches to discovering a cure and disease-modifying therapies and to improve social care services for the growing number of people with dementia? Government leadership and public-private partnerships will be needed to create and sustain big data resources. Key next steps are to create national infrastructures supporting “broad and deep” data; to develop international benchmarks to compare the performance of health systems; and to develop an international pilot project to demonstrate the benefits of linking broad and deep data to dementia research and care.

A-Good-Life-in-Old-Age

A Good Life in Old Age? Monitoring and Improving Quality in Long-term Care 

June 2013 - As ageing societies are pushing a growing number of frail old people into needing care, delivering quality long-term care services – care that is safe, effective, and responsive to needs – has become a priority for governments. Yet much still remains to be done to enhance evidence-based measurement and improvement of quality of long-term care services across EU and OECD countries. This book offers evidence and examples of useful experiences to help policy makers, providers and experts measure and improve the quality of long-term care services.

FURTHER READING

Health at a Glance 2017: OECD Indicators
November 2017 - Our flagship statistical publication includes a special chapter on long-term care, including dementia.

Help Wanted? Providing and Paying for Long-Term Care
June 2011 - As life expectancy pushes into the late 70s for men and well into the 80s for women, ever more people want help in order to be able to live their lives to the full for as long as possible. How will demographic and labour market trends affect the supply of family and friends available to care for us? Can we rely on family carers as the sole source of support for frail seniors? Should family carers and friends be better supported, and if so how? Can we attract and retain care workers -- is it just a matter of paying them better? Will public finances be threatened by the cost of providing care in the future? What should be the balance between private responsibility and public support in care-giving? Can we reduce costs by improving efficiency of long-term care services?

Dementia Care in 9 OECD Countries - A Comparative Analysis
July 2004 - This paper provides a comparative analysis of dementia care in 9 countries, with a particular focus on Alzheimer’s disease. The purpose is to provide health policymakers with a better understanding of the variations in approaches to treating dementia that exist among OECD countries to help them better formulate health policies for treating dementia.

To access the complete library of OECD resources on dementia, including publications and freely available working and policy papers, click here

Dementia and Care - Data

Antipsychotic prescribing rates, by sex
Per 1 000 people aged 65 and over, 2015 (or nearest year)

Antipsychotic-prescribing-rates

1. Data for Norway do not include people in institutional care, so underestimate the use of antipsychotics.
2. Data for Spain refer to 2014.
Source: Dementia prevalence in Health at a Glance 2017: OECD Indicators.
Access the data behind the graph.

 

Dementia and Care - Updates and Events

The World Dementia Council was established following the December 2013 G8 Summit on Dementia. It aims to provide global leadership in improving the conditions for research and innovation in dementia treatments, and in improving dementia prevention and care. The OECD hosted the second meeting of the World Dementia Council in Paris on 23 July 2014, and continues to play and important role in the Council’s work.

Contact us

For any queries about Dementia and Care, please write to Ms. Elina Suzuki: elina.suzuki@oecd.org.

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For general OECD work on dementia click here

For work on dementia and big data click here

For work on dementia and innovation click here

For general OECD work on health click here

 

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